Trudy Triumph's Neurogenic Bladder Blog

First Encounter with CompactCath, my Free Sample

Currently I use Speedicath by Coloplast.

Currently I use SpeedicathIMG_5584 by Coloplast.  For those who do not know Speedicath is small and looks like a skinny tube of lipstick. The complaints I have heard about Speedicath is that it is too short and one sometimes has to touch the lubricated ridged tip to insert it easily. But this catheter has served me well over the years.

Now I am provided with another option.IMG_5579

I received a sample: size twelve french. (Fourteen  french is what I normally use.)Measure

My first time using the catheter I definitely needed two hands. ( I can’t resit this tidbit. Most medical pictures have a woman separate her labia with one had and insert a catheter with the other.  For my book  Beyond Embarrassment I had a graphic artist change that in a picture, because actually the act of a woman opening her legs, opens her labia as well. Which is a good thing for the first time I inserted this new catheter!) I needed one hand to hold the device and one hand to pull the tubing out of the wound container.  As I pulled the tubing through the protective sheath, the white cylinder you see in the picture (which is great because I am sure this will cut down on infection) I got a little pinch because I did not pull it down far enough.

I then pulled on the  tubing to insert the catheter into my bladder, the lubrication is so slight that I could not see the slime but I know it was there, because the catheter is easily inserted.  An excess of lubrication can cause a yucky build-up over the day, actually, so it is nice that they have this type of lubrication, with no build up.

The urine flowed out quickly.

The ring shape made it easier to hold.  

Countless times I have dropped a catheter in the toilet. Not a fun fishing expedition, by the way! This is the part of their design that is surprising to me.  It is secure in my hands and easy to hold while using.

I am sure insertion will get better with practice.


CompactCath is a first of its kind compact urinary catheter, designed to fit seamlessly into the lives of active people who self-catheterize.
CompactCath features:
• Compact packaging that fits in your hand !
• Pre-lubrication for smooth insertion !
• Retractable mechanism allowing easy and discreet disposal !
• Flexible funnel for easy aiming !

• Non-touch hygiene mechanism for infection protection !

Thanks to modern medicine, people with chronic conditions who used to
be tied to hospital settings are now leading active, independent lives.
However, traditional catheters have been designed for the hospital, and
often come in the way of everyday activities.

CompactCath was designed by a multidisciplinary team of physicians,
engineers, and MBAs, in cooperation with physicians, nurses and patients.
We applied design thinking methodologies and are committed to improving
the quality of life of those who need to self-catheterize.

The result is CompactCath, a product that fits to the modern lifestyle of
patients. We envision a world where people will no longer have to fear or
fight with their medical devices. Time and energy should be spent on the
important things in life.

Alumni of the Stanford StartX-Med accelerator program,
CompactCath was founded in 2011 and is based in Palo Alto, CA.
CompactCath has presented at the Aspen Ideas Festival in 2012, obtained
2 patents in 2013, and expects FDA clearance in the summer of 2014.

Contact: !


New Back Cover of Beyond Embarrassment


Book Description:052915-BeyondEmbarrassment2_HiRes_Foreword2_6x9

Back Cover:


Reclaim Your Life

Release the Fear and Embarrassment

For Women Who Suffer and Those Who Share Their Journey


JoAnne’s story is engaging. It inspires, while offering suggestions for managing life’s hurdles. In an honest, will-to-succeed style, this journey focuses on neurogenic bladder and bowel condition in which a person lacks control due to a brain spinal cord or nerve condition. The source can be aging, a chronic health condition, trauma, or many other causes. Often called an under active or over active bladder or bowel, its symptoms vary but the difficult daily reality is shared.

  • Valuable guide, much like a fresh prescription filled with practical advice
  • Educates, empathizes, and encourages women who struggle with the same health issue
  • Written with a girlfriend-to girlfriend feel, sharing the path to survival and success
  • Sprinkled with Tips and Knowledge Nuggets that high light points of importance
  • Encouraging and equipping the reader to live every day to the utmost


With medical input from expert medical research librarian and Biosleuth, Julia Parker, readers will discover current research and facts equipping them to meet their medical challenges and work with their medical teams.  Valuable for healthcare professionals to share with patients


“Offers a candid memoir of her experience with neurogenic bladder and a wealth of practical advice about coping with its daily complications. An invaluable resource for NB sufferers.”

—Kirkus Review

“This is the best and most complete book on neurogenic bladder syndrome that I have read in my 30 years of family practice medicine. I will use it again and again as a resource and refer my patients to read this excellent book.”

—Kathy Matteson MN FNP ND Medical Provider

3 awards


Summer fun . . . Do not let a Neurogenic Bladder Stop YOU

I was accommodated at this stop.

I was accommodated at this stop.

My memories with my grandson were the best.

My memories with my grandson were the best.

Breathtaking beauty, I almost missed because I was not sure how to handle my neurogneic bladder.

Breathtaking beauty, I almost missed because I was not sure how to handle my neurogenic bladder.

My Husband Randy and Grant.

My Husband Randy and Grant.

Now that Summertime is almost here, I want to tell you about a Sheri Griffith River Rafting Trip, I took in Utah in April.  


Well of course a river rafting trip means a day-long excursion with no restrooms.  Because I use a woman's intermittent catheter to pee, excusing myself to take a swim is not an option. 

I also get concerned with sanitation.  How clean is the river water? What about my neurogenic bowel?  AN ENTIRE DAY, seemed overwhelming.

Luckily I have a husband who does not have the same concern.  He told me, "Even if the worst happens, you will have lasting memories."  I am so glad that I followed his advice.  

It is easy to fall prey to worry.  I had no reason to feel as I did.  The day went well because I made some arrangements with the owner before I went out.
1. I was honest and told them that I have a neurogenic bladder and bowel. That meant that I had to have clean water and a portable toilet.  
2. There was a chance that I would need to stop along the way. 
3. My back is fragile and I needed to sit forward.

No problem! When I arrived I rode with the owner of the company; we sat forward in an oar raft. This gave me the chance to talk to him about other accommodations he has made with others who had all kinds of disabilities. He said that they do it all of the time.

I give this tour company my highest rating.  I thank them from the bottom of my heart for giving me an exhilarating experience and great memories with my family!
About the tour 

Hidden along its path are wonderful steep-walled canyons that were carved by this powerful force of nature over the thousands of years. To experience the Colorado River up close and personal, on a few-days Colorado River rafting trip, is a lifetime experience not to be missed.

Utah's Premier Company | Rafting Trips out of Moab, UT on the Colorado River - Sheri Griffith Expeditions
About the Company
Why PICK US;Why Pick us?| Utah's Premier Company | Rafting Trips out of Moab, UT on the Colorado River - Sheri Griffith Expeditions has received numerous awards for business ethics and community involvement, including the prestigious “Best of State Award” for a River Outfitter and is the only Moab-based outfitter to be recognized by National Geographic as one of the “Best Outfitters on Earth.”

Kidney Kindness for the Neurogenic Bladder

Kidney beansAbout six months ago I was diagnosed with Third Stage Renal Failure. A wake up call for sure and I flipped of course because I am not the stoic sort. Please do not think bad of me, yes I grew up with Love Story too, I just do not want be the one saying long goodbyes. I know God is in control and in the end I have gotten used to the idea. Here is a little of what I have learned.

My husband and I had travels to do, so just yesterday was my first visit with the doctor who specializes in kidneys a Nephrologist.

What Is a Nephrologist?

“A nephrologist is a medical doctor who specializes in kidney care and treating diseases of the kidneys. The term nephrologist comes from the Greek word “nephros”, which means kidney or renal and “ologist” refers to someone who studies. Nephrologists are also called kidney doctors. Nephrologists are educated in internal medicine and then undergo more training to specialize in treating patients with kidney diseases. They commonly treat chronic kidney disease (CKD), polycystic kidney disease (PKD), acute renal failure, kidney stones and high blood pressure and are educated on all aspects of kidney transplantation and dialysis.”

For years I have been visiting the Virginia Mason Urology clinic, in Seattle Washington. Actually it is called the Urology and Kidney Transplant Department, Thoughts of dread swelled the first day I saw that sign. I was shocked to see the sign actually, I was not really thinking that there was such a strong connection between urological woes and kidney disease. “No dialysis or kidney transplant for me!” has been my mantra. Being real I need to know that even though it is unlikely it is possible for anyone with urological problems to end up with kidney disease.

My kidney woes likely started many years ago when I was living undiagnosed urine retention and then years following with back to back balder infections. For that part of the story check out my book, Beyond Embarrassment: Reclaiming your life with neurogenic bladder and bowel.

So yesterday was my first appointment on the other side. I was ushered to a different waiting area across the hall and observed several patients in wheel chairs. My stress level was a little high, but it did not come through with my blood pressure because that morning I participated in a over the top exercise class. Remember that physical exercise is good for blood pressure and high blood pressure is not good for your kidneys.

When I finally saw the doctor, he smiled, “ummm, your tests look pretty good.” I was thinking “If I have third stage kidney failure stamped on my chart, “How good is that?” Let me tell you what I learned from my doctor. He did not think I should even be there because usually he does not see patients until they were fourth of fifth stage.

I can live a long time this this condition. I am not sick yet and dialysis at fourth stage can be led off for many years. I walked out of there with a lighter step and will continue to be careful. Stay off the Advil, eat fresh fruits and vegetables. I do this anyway because it helps me with my neurogenic bowel.

All and all whatever looms in the future I will try my best.

How do you deal with difficult situations? Do you have a kidney story to tell? Please share.

Calling all Underactive Bladder Patients!

Stanford Biodesign 2Hi All,

Not long ago I was contacted by some doctors from Stanford, who are interested in connecting with those of us that have an underactive bladder.  I tried to get the scoop, but was told it was a secret for a while.  I am passing this along in case you are interested in contacting them.  If you do decide to help these fine folks, please let me know how it goes.  I told them that I might be interested too, after I found out what they were working on.  The underactive bladder is a real problem for many and it seems there is interest in helping us, thank God.

I wish you fine doctors at Stanford a windfall of positive results!


Calling all underactive bladder patients! 

 Stanford Biodesign is an innovative program located in the heart of Silicon Valley focused on solving meaningful clinical needs. Our team, composed of engineers and physicians, has a mission of helping patients with underactive/neurogenic bladder. Patients are at the heart of innovation – it is their need for better solutions that is driving us forward.


Therefore, we are looking to talk to you about your experiences to understand the issues of day-to-day management of your bladder. In return, we may be able to help you become one of the first patients who is finally free of self-catheterization. 


If you or someone you know has been diagnosed with underactive/neurogenic bladder and is interested in helping advance underactive/neurogenic bladder research, please send an email to with a subject “UAB research” and we will take it from there. Come be a part of helping the thousands of other individuals with this condition.



The Stanford biodesign fellows

Mike Carchia, MD

Véronique Peiffer, PhD

Craig Stauffer, MD

Rich Timm, MS


Support for Children Learning to Cath

Dear Trudy,Photo #4
I stumbled upon your site in my search for information about neurogenic bladders. Perhaps you or the broader bladder community can help me.  I am curious if there are any other moms (or dads/families) out there that can offer advice, guidance, direction, maybe overall support for this mom in flux.  My 6 year old daughter was born with a tethered spinal cord which has been corrected (twice) and in connection a neurogenic bladder. She is 90% potty trained. She is able to go during the day but cannot stay dry at night. Given her age (“pull ups” aren’t “cool”) at 6 the reality of cathing is entering our lives.  Bottom line with level 5 reflex and the bladder condition cathing will definitely be in her future. Mostly likely 2-3 times a day so we know it’s actually emptied. She is NOT a fan of it nor does she really understand.  Doctors are recommending a “Stoma” (aka port through her belly button). They say it’s much easier to access, cleaner and convenient. Overall an “easier” way to go. It can be reversed and she will still be able to go during the day. I don’t want to make a decision based on it being “easy” though i’m sure for one that has to cath convenience is a factor.  My question to this community is does anyone have it? Do you like it? How has it bettered your daily life vs. cathing?

Dear Friend,

Thank you for the question. I am not a doctor so I would not be the one to offer medical advice but there are organizations that might be able to offer advice. Organizations we endorse are found on the blog resource tab. In the book Beyond Embarrassment, there are many more resources.

You might try this one first. Underactive Bladder Foundation

I have personally met the founder and he is an honest good man. He would be a good to start with.

I hope all goes well, Trudy


Dear Trudy,
I am looking for an online support group for kids who have neurogenic bladder and have to self cath every day. Can you help?


Dear Friend,

I am not sure where you can find support groups for kids. Perhaps some information from the resource page on the blog and book, as well, will help.

Kids love to hang out and just be around other kids. Perhaps some would be too shy about discussing toileting with others.

I know from working in a school and going to the nurses room to cath myself there are several students who do the same thing every year. These kids go to the restroom and take care of business so they can go back to the halls and enjoy their friends. They consider it a quick in and out so they can get back to life.

If you feel like you are the one that needs a support group (I totally get that feeling, because as parents so many crazy things thrown at us) please call me. Email and I will send you my number. I know you’re afraid for your child and it is hard. Please try to see this through your child’s eyes. He will forever cath so this is normal for him. No sympathy needed. He will get on with it and live a good life, I am sure. Not long ago I watched a great documentary from Net Flex called When I Walk, It was great and I encourage you to watch it. It was about a young man  going through life losing everything,walking, all of it, because he had Multiple Sclerosis. His mother gave him no sympathy. She was his cheerleader. She tells him, “You have one life, go out there and live it, think of all that have to live in slums! You do not live in a slum!” Please write and let me know what you think.

I hope this helps, Trudy






Are you Searching? Beyond Embarrassment can help!

Dear Trudy,Photo #4

Hello all. I am a XX year old woman recently diagnosed with Neurogenic Bladder. I have a long history of UTI’s and urine retention which I chose to ignore for way to long. So now I am left with a bladder that does not contract at all. I have no neurological issues, feel healthy otherwise. But am told I need to self cath for life. I am looking for some inspiration from some women that have the same problem. The day to day is killing me emotionally. Any positive input would be great as I am new to this!

I assume you self cath….for how long have you been doing this?   Fortunately I have been infection free for a while.  Beside the normal bacteria in my urine from the self cathing.  All 3 Dr’s I have seen said that is normal and as long as I have no symptoms of infection I am good to go.  So fingers crossed that it continues this way.  I want to lead a normal life again, although it is now a new normal.

As far as the antidepressants, I really just started them so I have a feeling it will be a while before I am off them.  I was never depressed a day in my life.  The actual anxiety is what kills me.  My ultimate wish is to be this strong woman that prevails and continues a normal existence.  But I know it will take time.

I am sure this is all in your book which I purchased on Amazon yesterday.  But just looking for the inspiration….so for that I thank you!  Just your responding to me is huge!

Dear Friend,

You are exactly who I write the book for.  I wrote it for me too. We women who have questions and are searching. I hope you will find answers. When I was first diagnosed my burning question was how did this happen to my body?? You will find all of the causes that we could find. When you see all the causes you must understand that you are not alone, unfortunately you have a condition that many choose not to talk about.

Let’s start a conversation.

The depression will get better for you I hope, it did for me.  I have a whole depression chapter in my book.  It is a grieving you need to do.  You have lost something and you are feeling the loss.  Someday I hope you will wake up and feel like it is your new normal.  Please seek help. Being alone with your despair is not good. Share with your doctor and someone close to you.

It does not make the bladder infection pain go away or the inconvenience any easier, I know.  Greif is hard,

“Watch your way then, as a cautious traveler; and don’t be gazing at that mountain or river in the distance, and saying ‘How shall I ever get over them?’ but keep to the present little inch that is before you, and accomplish that in the little moment that belongs to it.  The mountain and the river can only be passed in the same way; and, when you come to them, you will come to the light and strength that belong to them. ” – M.A. Kelty

“The world breaks everyone, then some become strong at the broken places.” – Ernest Hemingway

Healing Path Quotes

Let me tell you what I started doing.  My kidneys are not doing so well because of my back to back infections.  I experienced depression, as well, that was heard to shake, not long ago. So on Sunday evening I started serving food at the local homeless shelter.  I am not kidding this is better than anything for my depression. This simple volunteer job has helped me with feeling appreciation for all that I have, and helps me to take my mind off my body.

I hope you will find a solution for yourself and find what works for you.  Most important is, do not give up.



Free eBooks of Beyond Embarrassment through Story Cartel

Story cartelRead eBook Beyond Embarrassment: Reclaiming your life with neurogenic bladder and bowel for free.

All of the books you see on Story Cartel are free in exchange for your honest review. Discover your next favorite book and support the community of authors.

Beyond Embarrassment is free for a limited time.

Beyond Embarrassment is free for a three weeks, starting now, in exchange for your honest review, you have one week after the three week launch, to complete your review.

For book lovers, Story Cartel is a resource to discover great books and fresh authors; for authors, it’s a platform to build deeper relationships with readers. Our book has met the guidelines, so we are able to launch our book on Story Cartel.

You will support us, JoAnne Lake and Julia Parker, by leaving your honest review?

Beyond Embarrassment is completely free for a short time, but in return you support us by leaving your honest review, whether good or bad, of our book you downloaded from the website. Your reviews help us market our book and gives us valuable feedback to improve our writing.

Reviews can be left of Beyond Embarrassment on:

  • Anywhere  you buy your books

Now go to and get out book for free!!

Third Stage Wake-Up Call: KIDNEY Health

5 stages picture

Just as this blog, has evolved and progressed over the past few years, so have I. I started the blog to unload thoughts regarding the fear and anxiety I experienced as a urological patient with neurogenic bladder and bowel. As my body continues to morph, I count on you the reader to be in the wings; as I cheer for you, you can cheer for me (I hope). Life is never stagnant and as we exist, our form is always adapting and changing. It’s a law of physics! As my body changes, I need to constantly remind myself that my soul and attitude are primary to my contentment. Aging is an indication of our bodies wearing out. I just want to take the process a bit slow.

The first time I walked into the Virginia Mason Urology clinic, I was not prepared for what I saw. I was in a state of shock. Jolting my plans of a gigantic brackish lunch of briny fish and chips at the hospital cafeteria after the appointment, I read the words that cut deep. The sign did not merely say Urology Clinic, but rather, the sign that made me change my lunch plans, read Urology and Kidney Transplant. My immediate gut reaction, as I stopped dead in my tracks was, “Give me a break; shouldn’t they shuffle the really sick people in the back and discreetly discuss Kidney Transplant in hushed tones”. There the sign was: front and center, staring me in the eyes making me want to flee the reminder that the future of harboring chronic bladder infections was ultimately kidney failure.

Now, I am still far from the transplant stage but I am walking down that trail, so, in the future you will see a few more posts regarding my kidneys; as I learn for myself kidney tidbits, I will share those with you. I will probably get some things wrong. REMEMBER, I am not a doctor; just a patient that likes to leak private information, whine and write.

About two and a half years ago my urologist noticed that my right kidney was larger than the left. I felt fine, I was not even concerned. Ignorance is bliss, they say. While the doctors were worrying about antibiotic resistance because my back to back bladder infections I gave no thought to my kidneys. There was really no discussion of them with my doctor, other than her telling me that she was watching them. I was unconcerned.

Then, the nagging pain in my back started. The aching, smarting, twinge, which I experience now, as I type this blog entry. I have had it for about 5 months. Over Christmas it was so severe that small kidney stones were suggested. My hands are a bit puffy which cosmetically does not bother me much. Sincerely, they look younger than before.

I decided to see a Naturopathic Doctor. I visited her twice and got an ear full. She said that there are five stages of kidney disease. The GFR (glomerular filtration rate) for my blood of “49” indicates that I am currently in stage 3 out of 5 toward kidney failure. She went on to say that the average GFR declines as you age, but a result of “60 or lower” shows that the kidneys are not functioning as well as they should.

Here are the stages of Kidney Health:

  • Stage 1: GFR- 90 or above: this indicates that the kidneys are functioning normally; it does not completely rule out kidney disease but is an indication that the kidneys are working well.
  • Stage 2: GFR 60-89: the function of the kidneys is slightly impaired.
  • Stage 3: GFR 30-59: the function of the kidneys is moderately reduced.
  • Stage 4: GFR 15-29: the function of the kidneys is severely impaired.
  • Stage 5: GFR 15 or under: the function of the kidneys is severely reduced and is often classified as kidney failure (often called renal failure)


Ii is very clear that my kidneys are being damaged, most probably due to my back to back bladder infections.  For this reason, I am on a permanent low dose of antibiotics.

As I try to keep my kidneys healthy I invite you along for the ride.  There is so much to learn and even more to fight for.


In a future blog post I will share with you the supplements she has suggested for me to try and how I am faring.

How do you try to protect your kidneys while living with a chronic illness? Please share.


Speech by Trudy Triumph at CURE UAB Symposium, Denver CO

MS Booth at the UAB CURE SynposiumMichaiel Chanselor and JoAnne

I was invited to speak at the 2nd International Congress on Under-active Bladder – CURE UAB, Denver CO.  12-3-15.

CURE-UAB is the only meeting dedicated to underactive bladder. The conference should help to create awareness for the aging UAB. The goal of CURE-UAB is to dramatically increase public awareness and translate research results into clinical care that will improve health outcomes in older adults. 

I was invited to speak at the CURE UAB Symposium because I write about the underactive bladder.  I use an intermittent catheter, my kidneys are wearing down.  I am a patient, but I refuse to be quiet because our voices need to be heard.  I feel thankful to have an opportunity to share the patients voice.

My Notes. 


I am one of 5 million people in America with bladder problems.

I feel humbled and honored to stand before you and right now.

Thank you for making this a priority.

You are working to make my life better and others as well.

Try to think back to a time when you faced a life changing

situation that you wanted to run from.

I want you to understand this walk I am on and to get an idea of my challenges.

To see that it takes a lot to have my head held high in a society, that finds it is acceptable to make jokes, about a life threatening, sometimes humiliating condition.

I want you to understand why I write a blog and have written a book about my paralyzed private parts.


My Early Symptoms were gradual over a period many of years…

  • My urine flow became weaker and weaker.
  • At times I had bowel accidents as I walked.
  • I was lethargic and depressed but luckily for me I was working as an elementary PE teacher so I had little opportunity to give in to how tired I felt. My symptoms just made my job really hard.
  • Food did not taste good.
  • Had a pain in the side of my body that would not go away.

Finding help

I went to several doctors was offered stool softeners, antidepressants for irritable bowel syndrome and depression.

This condition is difficult to diagnosis

Early diagnosis

By age 55, the pain was so intense it was enough to require a urologist’s intervention.

It turned out that urine retention had stretched my bladder so that 2 liters of urine were removed and left me prone to a bladder infection,

So I was taught how to use an intermittent catheter.

Dealing with the shame isolation and loneliness was hard..

When I left the doctor’s office on that fateful day after my diagnosis of urinary retention I was glad to know the root of my problems but I also I felt humiliated, defeated, and overwhelmingly embarrassed as well.

My many confusing symptoms were caused by a broken part…and to make matters worse it was…down there…

As I continued my daily life I had a menagerie of thoughts I needed to work through. Sometimes facing the world was difficult. To help process my thoughts I started journaling….. sometimes as prayers to God.

I had so many notes and scraps of paper with my innermost thoughts I decided to start an anonymous blog, under the pen name Trudy Triumph.

On February 12 of 2012 I posted my first blog entry sharing with the world about how I felt about my diagnosis of neurogenic bladder.

As I write to the world I imagine the reaction of my friends and family, I feel a bit queasy because, now they will have a peek into my very private life, just as you do now………………….

Part of me does not exactly want to be remembered in connection with a toilet, yet I see Urinary health as a last frontier of topics that need to have mature acceptance and an active audience.

Here are a few facts about my blog

  • Surprisingly more of my readers are men, yet when I write, I write to women.
  • My readers log on from around the world
  • My most looked at topic are those on intimacy and hysterectomy
  • I know from readers that people feel unheard and desperate and many are left with little help after diagnosis.
  • Many feel very isolated and alone, and afraid.     When I attended a blogging convention is San Jose last summer I shocked participants when I told them what I wrote about. I wish I had one of those go pro cameras on my head, so I could record the faces of shock and disbelief.

Here I am in front of all of you not just pleading for help just for me but for others as well.     Perhaps it could be because of back surgery, a vaginal hysterectomy or multiple sclerosis,    

I do not know why I developed neurogenic bladder and bowel.

 I do have some questions for you…

I feel as though I have had quality, caring medical care. I can live with a broken bladder and bowel but bladder infections continue. Just last month I was on two types of oral antibiotics.

A couple weeks week before that I was in the hospital with IV antibiotics for a kidney infection.


Chronic bladder infections are the bane of existence for me, for many of us with underactive bladder. I was given a short reprieve of about a year, using Gentimiasin, an antibiotic wash that I placed directly into my bladder. Unfortunately, I have become resistant to it.   

The Yoyo continues

Now, that I have to rely on oral antibiotics again, it is not unusual for me, upon completing a regimen of oral antibiotics, to soon find myself afflicted by another UTI.

Having a year off from bladder infections …. Was great!

Unexpected bladder infections affect my work week, they affect my relationships and they shorten my life.

So my question to you is how can a colony of bacteria in a bladder be taken care of?

I am not alone in fearing bladder and kidney infections…

Here are some samples of written comments:

A post from a young man that is scared

Need some opinions here… …………………………………………..

Hey Friends, I am going crazy. In April I was hospitalized for a kidney infection. I started with UTI symptoms, again, cloudy urine, increased bladder spasms, fatigue, low grade fever, etc.

I found out I have 2 types of bacteria’s in my urine and one is MRSA. Has anyone ever had a mrsa uti? This scares me to death!

If I could write to hip I would say YEP..I am part of the staff infection club too.

 A mother of a young child says

So tonight I was giving my daughter a bath and noticed her kidneys are really prominent.. Like u can see the outline and its freaking me out right now!

I find the letters about the kids hardest to read…

SO as you discuss my plight of UAB this weekend I plead with you to consider all of us that rely on intermittent cauterization. We certainly need your help to live a little longer. The subject of reoccurring bladder infections is important to discuss.

I have wondered why diagnosing Under Active Bladder is so difficult…

Urinary retention is difficult to diagnose. Especially in the early days before our bladders get so big. So many times those of us with urinary retention are diagnosed with fibermialga and given antidepressants.

How can you get the word out to other medical professionals that urine retention can be caused by so many things?

Is there a way to detect Urinary retention without the bladder becoming the size of a watermelon?

 I have a wish list I would like to share with you..I wish that catheters could be sold in a drug store.

I wish they were easily available. There are times when I travel that I know if I get into trouble and run out I would have to go to an emergency room.

And If I have to go to the hospital to buy emergency catheters then how hard will it be without a prescription?

There is a reason for this…I traveled with a group of students to the very hot city of Kyoto, Japan and the catheters I took melted in the heat. Luckily I had another variety that was given to me. That situation could have been a disaster.

ANOTHER WISHI wish patients could spend more time with urological nurses to learn about living strategies. SO many of us feel isolated and alone because we do not know how to cope with the ever occurring accidents that seem to crop up at unexpected times.

Perhaps I could help set up a support system for patients with your guidance.


The book

After working on the blog for a while I started the book with Julia Parker, the bright and very talented medical research librarian

Beyond Embarrassment, reclaiming your life with neurogenic bladder and bowel

The collaboration that happened was beyond my wildest dreams. So many people helped and contributed to the book

It is my deepest desire for others and myself to be heard

I feel an incredible responsibility for you to understand the human side of this condition.

The book is my Medical Memoir It is not just my voce but has other letters from patients as well

In writing the book I wrote about not only the physical part of my being but the spiritual as well. You will see a few scripture verses throughout the book.

I hope this part of my story will not be a deterrent to help others. I want my story to be inclusive

My goal in writing the blog and book is to offer others some lessons I have learned along the way such as

  • Be your own self advocate and partner with a doctor for the best health possible.
  • You are not alone.
  • Think of yourself as healthy and remember there is nothing to be embarrassed about.
  • Knowledge is power.
  • Tomorrow starts a new day.

My hope in sharing my story is helping others feel normal and making it easier for others to discuss bowel and bladder dysfunction.


 Please remember this…

Neurogenic bladder and bowel are isolating conditions. We are taught as youngsters never to talk about that part of our body. So please understand that when we come into see you, we are shaking in our boots.

Bladder and kidney infections are not only hard and painful but they also scare us. Please do your best to help us with this dilemma.

Many of us haven’t even confided to our friends and family and we are having a difficult time coming to terms with what our condition means.

  • Recurring bladder infections
  • Becoming resistant to antibiotics and
  • Loosing kidney function

Many of us are elderly and so confused.

It is important for us to have living strategies in place for a working comfortable life, there is more to our needs than the medical side. We need practical advice.

Thank you for spending your time to understand this condition. It is my heartfelt wish that many will benefit from your hard work.

We have a book table set up please come visit us.

The Researcher for the book, Biosleuth Julia Parker will be there and is willing to help any of you better understand the new PUB MED cataloging system for medical research.

Our books will be on sale too.

The cost is $16.95, if you are interested in paying by credit card. Please log on to your own device to and follow the props to buy the book.

Our goal with this book is to help others.   Because of this we are offering a package deal as well. If you order 12 or more books we will offer you a 25 % discount. Please come see us at the table.

Thank you for taking your time to better understand UAB. You will make my life better because of your fine work.

How could I have done better?  What more could I have said?

Happy New Year!!


Your Cart