I want to take a break from writing about my neurogenic bladder and bowel issues in present-day U.S. (with all the comforts, cures, latest devices, assorted antibiotics, and medical treatments available to us). I would like to now put the spotlight on my sisters, in developing countries, who suffer from a far more humiliating and painful…
Posts Categorized: Bladder Pain
Dear Mr. Limbaugh, On Wednesday, September 6, I was listening to your program when you mocked a reporter for sharing on the news about a bowel accident he had while in the Press Room at the White House. You said that it is not ok to talk about these things. I disagree. It is important…
“Spring passes and one remembers one’s innocence. Summer passes and one remembers one’s exuberance. Autumn passes and one remembers one’s reverence. Winter passes and one remembers one’s perseverance.” ― Yoko Ono https://www.goodreads.com/quotes/tag/aging Many times, bladder and bowel problems go along with aging. My birthday is this week and to be honest with you, aging has been…
Trudy talks about Pelvic Pain: Pelvic pain has many causes; endometriosis, menstruation, constipation, for me I am sure mine was caused by bladder infections that cropped up nonstop, because of my underactive bladder. With all of the drama and head games swirling in my head I, at one time, I lost my identity. Was I a sexy…
Question: Dear Trudy, I would like to be part of a support group of neurogenic bladder. I am very concerned about it as far as the urologist advised me to self-catheter twice a day. I am in shock. My husband is helping me right now but I have to get used of it. Also I am…
I realize lately I have been complaining a lot about my wellbeing. I apologize for thatPhoto #4, but since I feel rotten and this is my blog, you get to ride along. Personally, kidney- bladder infections are the pits. I have been letting my family practice doctor handle my chronic bladder infections these days; perhaps it is not working out so well.
Last Wednesday I felt an infection start. My urine smelled like ammonia; I knew I was in trouble. The doctor told me to “make sure I needed antibiotics”, so I waited until my urine was cloudy and my bladder and body was wracked with so much pain I could barely stand it. I went to the Saturday clinic, thinking that I could drop off a urine sample and then get some antibiotics. But, no, this is where my story gets started . . . .
Lately I have been a “Frequent Flyer” – that is, with multiple doctor’s offices. I have been in to visit my urologist, a “doc in a box” emergency care clinic last Saturday, and today, I am heading out to my family practice doctor. WHY?
All because I can’t seem to get these bladder/kidney infections under control.
The pain is distracting, as I know many of you understand. I have had back pain because of my kidney and bladder that seems to take over my body because it makes my whole body hurt.
What I have a hard time comprehending, digesting and determining is to whom do I go when the problem persists? A few months ago I was in the emergency room due to a kidney infection. No kidding, it caught me totally off guard; I thought it was an appendicitis, it hurt so much. Once in the emergency room, I was told to book an appointment with my “doctor”.
I automatically booked one with my urologist. When I got there, however, my doctor was out of the office and the Tech lady asked me, ”Who is treating your kidney infection?” I thought, “ummm, well I thought YOU were,” but perhaps I should have gone to my family practice doctor. I was given some antibiotics and told to take them for a week. I could tell however, just by how my urine smelled after the course of antibiotics was complete, though that I was still in trouble. I dutifully stopped taking them. Sure enough, the pain and cloudy urine showed up several days later, again, now, on a Saturday.
Not long ago I received this comment from the Ask a Question part of the blog.
I’m a 23 years old male who thinks I have neurogenic bladder, yet not diagnosed. Here is my story, about 4 months ago I took shower with cold water and the next day was like a hell, I went to toilet like 20 times, but nothing happened during the night, I mean I didn’t wake up to urinate. Anyway the following month was up and down, some days were good, some days weren’t.
Two months after that, I made very silly things due to my social phobia. I cannot go toilet in public spaces, actually it is very hard for me to go toilet except, my house. During those days I had to travel a lot, and I had to use public toilets, but I couldn’t. I held my urine like 4-5 hours for first day, later 2-3 hours and for 1 week all this time I was holding my urine. When I got back home, after all this incidents, I felt weird on my bladder area and urine flow. My urine was not like how it used to be and sensation of urge to urinate has decreased. I went to doctor and he tested me with a urine flow meter and said yes there is a problem.
I don’t think it is a bladder problem. I think it is neurologic bladder, cause sensation is disappeared now. I am able to go when I got the toilet, but in morning I can’t feel urge to go to toilet. I start to urinate after 5-8 seconds. I hope you can give some idea about what I have and how I am going to manage it.
Sorry for my English, I’m not from UK or US.
Best Wishes, Utku
For years had symptoms of Neurogenic Bladder not understanding what that was.. But a turning point for me was when I got very sick with bladder problems. Neurogenic bladder is a bladder problem.
The needs of my body and soul are pretty basic:
2.A clean restroom
3.Plenty of sleep
Do I ask for too much?
I keep up very well with my family, most of the time. They do not offer me sympathy because I do not have a working bladder or bowel. They do not notice and do not care because there is more to our life together than my physical limitations. I lead a full life and enjoy most of it, but not always.
Just because I do not talk so much to my family about my restrictions in life, it does not mean that I do not have them. My fleshly constraints sometimes impact those I love the most and they do not even remember the reason why.
At night my muscles ache and I have severe pelvic pain. If I complained to my domestic dears every time it happens I am sure they would avoid me like the plague. I try to foster wonderful experiences with my family during the day.
At night I get bone tired. Stay out of my way, I need my sleep. I can become short-tempered and irritable. But, for the most-part, my family knows this and steer clear of me.
Not long ago I received some questions from a reader, Mark, on the “Ask a Question” part of this blog about the process of receiving a diagnosis for Neurogenic Bladder. Below is Mark’s letter with our answers to his questions.