Posts Categorized: My story
Sometimes I get questions that make me feel emotional. This one did because I was invited to consider her very private confession, one that affects so many of us. I cried because she wondered about her “self worth”. The journey we travel is hard; I will not lie to you. Like the fighters we are,…
I am going to get real with you and take a moment to express what really comes natural to me: Honestly, “What would Jesus do?” Here goes: Not long ago our school district had a meeting for substitute teachers at the local high school where I retired from and occasionally “sub”. I’ll set the stage:…
I wrote my memoir as I blogged about the topic of neurologenic bladder over several years. My story is unfortunately common because bladder problems many times go undiagnosed and haunt many. Imagine my surprise when I discovered that my many symptoms were because of a broken bladder. I had no idea. Then imagine my second…
All the world is full of suffering. It is also full of overcoming. Helen Keller Have depression? What you can do to help. Many years ago, I was diagnosed with neurogenic (under active/paralyzed) bladder and bowel. Because the unfortunate tidings were hard to accept and process, journaling and blogging became my routine. On the web,…
About six months ago I was diagnosed with Third Stage Renal Failure. A wake up call for sure and I flipped of course because I am not the stoic sort. Please do not think bad of me, yes I grew up with Love Story too, I just do not want be the one saying long goodbyes. I know God is in control and in the end I have gotten used to the idea. Here is a little of what I have learned.
My husband and I had travels to do, so just yesterday was my first visit with the doctor who specializes in kidneys a Nephrologist.
What Is a Nephrologist?
A nephrologist is a medical doctor who specializes in kidney care and treating diseases of the kidneys. The term nephrologist comes from the Greek word “nephros”, which means kidney or renal and “ologist” refers to someone who studies. Nephrologists are also called kidney doctors. Nephrologists are educated in internal medicine and then undergo more training to specialize in treating patients with kidney diseases. They commonly treat chronic kidney disease (CKD), polycystic kidney disease (PKD), acute renal failure, kidney stones and high blood pressure and are educated on all aspects of kidney transplantation and dialysis.
For years I have been visiting the Virginia Mason Urology clinic, in Seattle Washington. Actually it is called the Urology and Kidney Transplant Department, Thoughts of dread swelled the first day I saw that sign. I was shocked to see the sign actually, I was not really thinking that there was such a strong connection between urological woes and kidney disease. “No dialysis or kidney transplant for me!” has been my mantra. Being real I need to know that even though it is unlikely it is possible for anyone with urological problems to end up with kidney disease.
My kidney woes likely started many years ago when I was living undiagnosed urine retention and then years following with back to back balder infections. For that part of the story check out my book, Beyond Embarrassment: Reclaiming your life with neurogenic bladder and bowel.
So yesterday was my first appointment on the other side. I was ushered..
Just as this blog, TrudyTriumph.com has evolved and progressed over the past few years, so have I. I started the blog to unload thoughts regarding the fear and anxiety I experienced as a urological patient with neurogenic bladder and bowel. As my body continues to morph, I count on you the reader to be in the wings; as I cheer for you, you can cheer for me (I hope). Life is never stagnant and as we exist, our form is always adapting and changing. It’s a law of physics! As my body changes, I need to constantly remind myself that my soul and attitude are primary to my contentment. Aging is an indication of our bodies wearing out. I just want to take the process a bit slow.
I realize lately I have been complaining a lot about my wellbeing. I apologize for thatPhoto #4, but since I feel rotten and this is my blog, you get to ride along. Personally, kidney- bladder infections are the pits. I have been letting my family practice doctor handle my chronic bladder infections these days; perhaps it is not working out so well.
Last Wednesday I felt an infection start. My urine smelled like ammonia; I knew I was in trouble. The doctor told me to “make sure I needed antibiotics”, so I waited until my urine was cloudy and my bladder and body was wracked with so much pain I could barely stand it. I went to the Saturday clinic, thinking that I could drop off a urine sample and then get some antibiotics. But, no, this is where my story gets started . . . .
Having coping strategies in place is more than important and necessary for a healthy productive life. Our goal is to go out and live our lives.
Often pain is involved, concerns for possible embarrassment if we have an accident, and a factor of feeling isolated because we have a great fear of others discovering that we have toileting issues. Often we have bladder infections that render us helpless until we get what we need. Our goal is to live life to the fullest. Here are some coping strategies that help me.
Many people ask me about incontinence and think because I have both bowel and bladder incontinence that it must be a death sentence. Well I am here to remind you that it is not and despite some hustles, life goes on.