Trudy Triumph's Neurogenic Bladder Blog

Posts Categorized: Urine Retention

Book Beyond Embarrassment can Help When Using an Intermittent Catheter at Work

School is already in full swing.  I thought this question was so timely. Working in a busy school environment can be so fast paced and crowded.  Our need for cleanliness, privacy, and professionalism all seem to collide at times. Especially when learning to use  an intermittent catheter. The book “Beyond Embarrassment” can offer useful tips….

No Trash Can in Stall: Disposing of an Intermittent Catheter

I am going to get real with you and take a moment to express what really comes natural to me: Honestly, “What would Jesus do?”  Here goes: Not long ago our school district had a meeting for substitute teachers at the local high school where I retired from and occasionally “sub”.  I’ll set the stage:…

Bladder Problems and Female Genital Mutilation

Alright folks, fasten your seat belts, this is not fun to read, but in order to be thorough, I want to share with you my take on a topic that has been in the news lately. Because of my blog, TrudyTriumph.com I spend a lot of time trying to understand the causes of bladder and bowel…

Pelvic Pain and Bladder Infections

Trudy talks about Pelvic Pain: Pelvic pain has many causes; endometriosis, menstruation, constipation, for me I am sure mine was caused by bladder infections that cropped up nonstop, because of my underactive bladder. With all of the drama and head games swirling in my head I, at one time, I lost my identity.  Was I a sexy…

Woman’s Intermittent Catheter, you can do it!

Question: Dear Trudy, I would like to be part of a support group of neurogenic bladder. I am very concerned about it as far as the urologist advised me to self-catheter twice a day. I am in shock. My husband is helping me right now but I have to get used of it. Also I am…

Support for Children Learning to Cath

Dear Trudy,
I stumbled upon your site in my search for information about neurogenic bladders. Perhaps you or the broader bladder community can help me. I am curious if there are any other moms (or dads/families) out there that can offer advice, guidance, direction, maybe overall support for this mom in flux. My 6 year old daughter was born with a tethered spinal cord which has been corrected (twice) and in connection a neurogenic bladder. She is 90% potty trained. She is able to go during the day but cannot stay dry at night. Given her age (“pull ups” aren’t “cool”) at 6 the reality of cathing is entering our lives. Bottom line with level 5 reflex and the bladder condition cathing will definitely be in her future. Mostly likely 2-3 times a day so we know it’s actually emptied. She is NOT a fan of it nor does she really understand. Doctors are recommending a “Stoma” (aka port through her belly button). They say it’s much easier to access, cleaner and convenient. Overall an “easier” way to go. It can be reversed and she will still be able to go during the day. I don’t want to make a decision based on it being “easy” though i’m sure for one that has to cath convenience is a factor. My question to this community is does anyone have it? Do you like it? How has it bettered your daily life vs. cathing?

Dear Friend,

Thank you for the question. I am not a doctor so I would not be the one to offer medical advice but there are organizations that might be able to offer advice. Organizations we endorse are found on the blog resource tab. In the book Beyond Embarrassment, there are many more resources.

You might try this one first. Underactive Bladder Foundation http://www.underactivebladder.org/

I have personally met the founder and he is an honest good man. He would be a good to start with.

I hope all goes well, Trudy

Dear Trudy,

I am looking for an online support group for kids who have neurogenic bladder and have to self cath every day. Can you help?

Thanks,

Dear Friend,

I am not sure where you can find support groups for kids. Perhaps some information from the resource page on the blog and book, as well, will help.

Kids love to hang out and just be around other kids. Perhaps some would be too shy about discussing toileting with others.

I know from working in a school and going to the nurses room to cath myself there are several students who do the same thing every year. These kids go to the restroom and take care of business so they can go back to the halls and enjoy their friends. They consider it a quick in and out so they can get back to life.

If you feel like you are the one that needs a support group (I totally get that feeling, because as parents so many crazy things thrown at us) please call me. Email and I will send you my number. I know you’re afraid for your child and it is hard. Please try to see this through your child’s eyes. He will forever cath so this is normal for him. No sympathy needed. He will get on with it and live a good life, I am sure. Not long ago I watched a great documentary from Net Flex. Called When I Walk, It was great and I encourage you to watch it. It was about a young man going through life losing everything,walking, all of it, because he had Multiple Sclerosis. His mother gave him no sympathy. She was his cheerleader. She tells him, “You have one life, go out there and live it, think of all that have to live in slums! You do not live in a slum!” Please write and let me know what you think.

I hope this helps, Trudy

Urodynamic Test

I wonder as I am sitting in a chair, my perineum eye level to the person conducting the test…exactly what are you looking for?

Where, Oh Where, Has My Sacral Nerve Gone? Uroplasty?

Urgent PC Neuromodulation System, which is a non-drug, office bases treatment for an overactive bladder. I do not have an overactive bladder. I have no feeling when it comes to an urgency to pee so my bladder is far from overactive, it is not act5ive at all, yet my urologist thinks that this therapy is worth a try because she feels that area can come back to me if it is stimulated.

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