Trudy Triumph's Neurogenic Bladder Blog

Posts Categorized: Convenience Tips

Traveling with an Underactive Bladder

Dear Trudy and Friends of the Group, Here we are planning to travel to Argentina where my dad waits for me; he is 92 years old. I am very anxious about it. It is my first time to travel with caths. Our plane travel will be very long, and to cross the Atlantic means 12…

No Trash Can in Stall: Disposing of an Intermittent Catheter

I am going to get real with you and take a moment to express what really comes natural to me: Honestly, “What would Jesus do?”  Here goes: Not long ago our school district had a meeting for substitute teachers at the local high school where I retired from and occasionally “sub”.  I’ll set the stage:…

Dear Rush Limbaugh, It is ok to Talk about Accidents at Work!

Dear Mr. Limbaugh, On Wednesday, September 6,  I was listening to your program when you mocked a reporter for sharing on the news about a bowel accident he had while in the Press Room at the White House.  You said that it is not ok to talk about these things. I disagree.  It is important…

Depression and a Neurogenic Bladder and Bowel

Depression is a real condition for those of us who live with a chronic condition.  Just yesterday, Tuesday, I invited a friend to walk with me.  It turned out that I ended up going by myself.  It was so good that I did because, I ended up having an accident the furthest point from my…

Reliable Medical Information for the Patient from a Biosleuth

Does it Keep You Up at Night? How to Find Reliable Medical Information In-Between Doctor Appointments So, you had your doctor’s appointment in the morning and you’re replaying the appointment again in your head. The doctor reviewed your health status and gave you a list of “To Do” items that he’d like for you to…

A Flacid Bladder Question for Trudy

Question for Trudy: Hi! First I want to say thanks for being brave and speaking out about this problem. I have small, flaccid neurogenic bladder. My question is should I wear diapers? I do wear menstrual pads, but sometimes they are not strong enough to keep the fluid in, so I must change them from…

An Attitude Change was in Order

Now I am bold when it comes to my health story.  This attitude is new to me because I have not always felt this way.  At first I was horrified, then very embarrassed by my diagnosis of neurogeneic bladder. After trying to learn more about this difficult condition, I felt frustrated because I could not find the…

Woman’s Intermittent Catheter, you can do it!

Question: Dear Trudy, I would like to be part of a support group of neurogenic bladder. I am very concerned about it as far as the urologist advised me to self-catheter twice a day. I am in shock. My husband is helping me right now but I have to get used of it. Also I am…

Support for Children Learning to Cath

Dear Trudy,
I stumbled upon your site in my search for information about neurogenic bladders. Perhaps you or the broader bladder community can help me. I am curious if there are any other moms (or dads/families) out there that can offer advice, guidance, direction, maybe overall support for this mom in flux. My 6 year old daughter was born with a tethered spinal cord which has been corrected (twice) and in connection a neurogenic bladder. She is 90% potty trained. She is able to go during the day but cannot stay dry at night. Given her age (“pull ups” aren’t “cool”) at 6 the reality of cathing is entering our lives. Bottom line with level 5 reflex and the bladder condition cathing will definitely be in her future. Mostly likely 2-3 times a day so we know it’s actually emptied. She is NOT a fan of it nor does she really understand. Doctors are recommending a “Stoma” (aka port through her belly button). They say it’s much easier to access, cleaner and convenient. Overall an “easier” way to go. It can be reversed and she will still be able to go during the day. I don’t want to make a decision based on it being “easy” though i’m sure for one that has to cath convenience is a factor. My question to this community is does anyone have it? Do you like it? How has it bettered your daily life vs. cathing?

Dear Friend,

Thank you for the question. I am not a doctor so I would not be the one to offer medical advice but there are organizations that might be able to offer advice. Organizations we endorse are found on the blog resource tab. In the book Beyond Embarrassment, there are many more resources.

You might try this one first. Underactive Bladder Foundation http://www.underactivebladder.org/

I have personally met the founder and he is an honest good man. He would be a good to start with.

I hope all goes well, Trudy

Dear Trudy,

I am looking for an online support group for kids who have neurogenic bladder and have to self cath every day. Can you help?

Thanks,

Dear Friend,

I am not sure where you can find support groups for kids. Perhaps some information from the resource page on the blog and book, as well, will help.

Kids love to hang out and just be around other kids. Perhaps some would be too shy about discussing toileting with others.

I know from working in a school and going to the nurses room to cath myself there are several students who do the same thing every year. These kids go to the restroom and take care of business so they can go back to the halls and enjoy their friends. They consider it a quick in and out so they can get back to life.

If you feel like you are the one that needs a support group (I totally get that feeling, because as parents so many crazy things thrown at us) please call me. Email and I will send you my number. I know you’re afraid for your child and it is hard. Please try to see this through your child’s eyes. He will forever cath so this is normal for him. No sympathy needed. He will get on with it and live a good life, I am sure. Not long ago I watched a great documentary from Net Flex. Called When I Walk, It was great and I encourage you to watch it. It was about a young man going through life losing everything,walking, all of it, because he had Multiple Sclerosis. His mother gave him no sympathy. She was his cheerleader. She tells him, “You have one life, go out there and live it, think of all that have to live in slums! You do not live in a slum!” Please write and let me know what you think.

I hope this helps, Trudy

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