School is already in full swing. I thought this question was so timely. Working in a busy school environment can be so fast paced and crowded. Our need for cleanliness, privacy, and professionalism all seem to collide at times. Especially when learning to use an intermittent catheter. The book “Beyond Embarrassment” can offer useful tips….
Posts Categorized: Empathy
Dear Mr. Limbaugh, On Wednesday, September 6, I was listening to your program when you mocked a reporter for sharing on the news about a bowel accident he had while in the Press Room at the White House. You said that it is not ok to talk about these things. I disagree. It is important…
I don’t know about you but I grew up in a rough neighborhood. It was rural Prunedale, California. Our school and playground got scrappy. I don’t remember any of my friends asking me how I felt. We just ran as fast as we could to the wall ball area so we could be first in…
Hello all. I am a XX year old woman recently diagnosed with Neurogenic Bladder. I have a long history of UTI’s and urine retention which I chose to ignore for way to long. So now I am left with a bladder that does not contract at all. I have no neurological issues, feel healthy otherwise. But am told I need to self cath for life. I am looking for some inspiration from some women that have the same problem. The day to day is killing me emotionally. Any positive input would be great as I am new to this!
I assume you self cath….for how long have you been doing this? Fortunately I have been infection free for a while. Beside the normal bacteria in my urine from the self cathing. All 3 Dr’s I have seen said that is normal and as long as I have no symptoms of infection I am good to go. So fingers crossed that it continues this way. I want to lead a normal life again, although it is now a new normal.
As far as the antidepressants, I really just started them so I have a feeling it will be a while before I am off them. I was never depressed a day in my life. The actual anxiety is what kills me. My ultimate wish is to be this strong woman that prevails and continues a normal existence. But I know it will take time.
I am sure this is all in your book which I purchased on Amazon yesterday. But just looking for the inspiration….so for that I thank you! Just your responding to me is huge!
You are exactly who I write the book for. I wrote it for me too. We women who have questions and are searching. I hope you will find answers. When I was first diagnosed my burning question was how did this happen to my body?? You will find all of the causes that we could find. When you see all the causes you must understand that you are not alone, unfortunately you have a condition that many choose not to talk about.
Let’s start a conversation.
The depression will get better for you I hope, it did for me. I have a whole depression chapter in my book. It is a grieving you need to do. You have lost something and you are feeling the loss. Someday I hope you will wake up and feel like it is your new normal. Please seek help. Being alone with your despair is not good. Share with your doctor and someone close to you.
It does not make the bladder infection pain go away or the inconvenience any easier, I know. Greif is hard,
“Watch your way then, as a cautious traveler; and don’t be gazing at that mountain or river in the distance, and saying ‘How shall I ever get over them?’ but keep to the present little inch that is before you, and accomplish that in the little moment that belongs to it. The mountain and the river can only be passed in the same way; and, when you come to them, you will come to the light and strength that belong to them. ” – M.A. Kelty
“The world breaks everyone, then some become strong at the broken places.” – Ernest Hemingway
Healing Path Quotes
Let me tell you what I started doing. My kidneys are not doing so well because of my back to back infections. I experienced depression, as well, that was heard to shake, not long ago. So on Sunday evening I started serving food at the local homeless shelter. I am not kidding this is better than anything for my depression. This simple volunteer job has helped me with feeling appreciation for all that I have, and helps me to take my mind off my body.
I hope you will find a solution for yourself and find what works for you. Most important is, do not give up.
Last night I was invited to join friends for a free concert. What a delight.
The evening was sponsored by Umbrella Ministries, a nonprofit, strictly volunteer, Christian organization that reaches out to mothers who have lost a child. The evening was full of hope and promise. The founder, Daisy, got up and spoke about the complete devastation she experienced when she lost her child. The words she wrote were put into a book eventually, and used to help others. She included words of scripture and practical advice that continue to heal broken hearts.
The power of Scripture. The power of words. The power of not feeling alone.
There is that part of us, in our very core that begs to have people understand us. Sometimes mere words cannot be spoken that convey what you want to say or even what you want to hear. Feelings and emotions can be too sharp; too painful. Some topics are just too emotional, too personal, too embarrassing, and too raw.
Last night as I sat feeling tender and very glad I was a part of something bigger than myself, it got me to thinking: this blog that you are reading started much in the same way as Umbrella Ministries.
Journaling is like a little seed . . .
The needs of my body and soul are pretty basic:
2.A clean restroom
3.Plenty of sleep
Do I ask for too much?
I keep up very well with my family, most of the time. They do not offer me sympathy because I do not have a working bladder or bowel. They do not notice and do not care because there is more to our life together than my physical limitations. I lead a full life and enjoy most of it, but not always.
Just because I do not talk so much to my family about my restrictions in life, it does not mean that I do not have them. My fleshly constraints sometimes impact those I love the most and they do not even remember the reason why.
At night my muscles ache and I have severe pelvic pain. If I complained to my domestic dears every time it happens I am sure they would avoid me like the plague. I try to foster wonderful experiences with my family during the day.
At night I get bone tired. Stay out of my way, I need my sleep. I can become short-tempered and irritable. But, for the most-part, my family knows this and steer clear of me.
Many people ask me about incontinence and think because I have both bowel and bladder incontinence that it must be a death sentence. Well I am here to remind you that it is not and despite some hustles, life goes on.
Another great question has come in that I want to share my thoughts about with you: Hi, I was diagnosed with neurogenic bladder and IBS three years ago. I have been frustrated with the lack of information and support my doctors give me. So, I am delighted to have found you are blogging about people…
So for my 100th blog post I want to say THANK YOU FORM THE BOTTOM OF MY HEART FOR BEING A PART OF MY HEALING. MY BODY MIGHT BE BROKEN BUT MY SPIRIT SOARS BECAUSE OF YOU.