Trudy Triumph's Neurogenic Bladder Blog

Posts Tagged: neurogenic bowel

Beyond Embarrassment – Symbolism and Depth of Coverage

Recently two important questions were submitted via the website about our book, “Beyond Embarrassment.” I’d like to take this opportunity to share them with you and give you a bit more insight into what it has meant for me, living beyond my neurogenic bladder and bowel. The EASY one, relates to our book cover: “Why…

Depression and a Neurogenic Bladder and Bowel

Depression is a real condition for those of us who live with a chronic condition.  Just yesterday, Tuesday, I invited a friend to walk with me.  It turned out that I ended up going by myself.  It was so good that I did because, I ended up having an accident the furthest point from my…

Reliable Medical Information for the Patient from a Biosleuth

Does it Keep You Up at Night? How to Find Reliable Medical Information In-Between Doctor Appointments So, you had your doctor’s appointment in the morning and you’re replaying the appointment again in your head. The doctor reviewed your health status and gave you a list of “To Do” items that he’d like for you to…

Drugs and Devices to Discuss with Your Doctor

               Michelle Y. Llamas                  Snior Content Writer, Drugwatch.com                  mllamas@drugwatch.com  Occasionally we are fortunate enough to have a guest. Michelle Llamas is a blogger from Drug Watch We all rely on drugs and medical devices to improve the quality of life for us and out loved ones. But sometimes drugs put device companies put unsafe products on the…

Finding Joy in the Mist of Trouble

10 ways to find your joy Find joyful books, How about,  Marley and Me? Find joyful people. Celebrate what you have, even the little things. Be creative. Help another. Organize a drawer. Take a load to Salvation Army. Stay away from the news. Forgive past grievances. Think of something that you can smile about. MY…

Back Packing in Southeast Asia with a Neurogenic Bladder and Bowel

Last week I received a question from a reader.  It threw me a bit because I was tempted to put on my “Mommy hat” and say, “No, stop, you don’t want a bladder infection, stay home!”  Luckily, I have an adventurous side, as well. I met my husband in Europe and as you can see…

Summer fun . . . Do not let a Neurogenic Bladder Stop YOU

I was accommodated at this stop.
I was accommodated at this stop.
My memories with my grandson were the best.
My memories with my grandson were the best.
Breathtaking beauty, I almost missed because I was not sure how to handle my neurogneic bladder.
Breathtaking beauty, I almost missed because I was not sure how to handle my neurogneic bladder.
My Husband Randy and Grant.
My Husband Randy and Grant.
Now that Summertime is almost here I want to tell you about a Sheri Griffith River Rafting Trip, I took in Utah last April.

I DID IT!!

Well of course a river rafting trip means a day long excursion with no restrooms. Because I use a woman’s intermittent catheter to pee, excusing myself to take a swim is not an option.

I also get concerned with sanitation. How clean is the river water? What about my neurogneic bowel? AN ENTIRE DAY, seemed overwhelming.

Luckily I have a husband that does not have the same concern. He told me that even if the worst happens, you will have lasting memories. I am so glad that I followed his advice.

It is easy to fall prey to worry. I had no reason to feel as I did. The day went well because I made some arrangements with the owner before I went out.
1. I was honest and told them that I have a neurogneic bladder and bowel. That meant that I had to have clean water and a portable toilet.
2. There was a chance that I would need to stop along the way.
3.My back was fragile and I needed to sit forward.

No problem, when I arrived I rode with the owner of the company and sat forward in an ore raft.

I had chance to talk to him about other accommodations he had made with others with all kinds of disabilities. He said that they do it all of the time.

I give this tour company my highest rating. I thank them from the bottom of my heart for giving me an exhilarating experience and great memories with my family!
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About the tour
Hidden along its path are wonderful steep-walled canyons that were carved by this powerful force of nature over the thousands of years. To experience the Colorado River up close and personal, on a few-day Colorado River rafting trip, is a lifetime experience not to be missed.

http://www.griffithexp.com/

Utah’s Premier Company | Rafting Trips out of Moab UT on the Colorado River – Sheri Griffith Expeditions
About the Company
http://www.griffithexp.com/why-pick-us
Sheri Griffith, Why PICK USWhy Pick us| Utah’s Premier Company | Rafting Trips out of Moab UT on the Colorado River – Sheri Griffith Expeditions Sheri Griffith River Expeditions has received numerous awards for business ethics and community involvement. Including the prestigious “Best of State Award” for River Outfitter and is the only Moab based outfitter to be recognized by National Geographicas one of the “Best Outfitters on Earth.”

Speech by Trudy Triumph at CURE UAB Symposium, Denver CO

I was invited to speak at the 2nd International Congress on Under-active Bladder – CURE UAB, Denver CO. 12-3-15.

CURE-UAB is the only meeting dedicated to underactive bladder. The conference should help to create awareness for the aging UAB. The goal of CURE-UAB is to dramatically increase public awareness and translate research results into clinical care that will improve health outcomes in older adults.

I was invited to speak at the CURE UAB Symposium because I write about the underactive bladder. I am also a patient. I use an intermittent catheter, my kidneys are wearing down. I am a patient, but I refuse to be quiet because our voices need to be heard. I feel thankful to have an opportunity to share the patients voice.

My Notes.

Intro

I am one of 5 million people in America with bladder problems.

I feel humbled and honored to stand before you and right now.

Thank you for making this a priority.

You are working to make my life better and others as well.

Try to think back to a time when you faced a life changing

situation that you wanted to run from.

I want you to understand this walk I am on and to get an idea of my challenges.

To see that it takes a lot to have my head held high in a society, that finds it is acceptable to make jokes, about a life threatening, sometimes humiliating condition.

I want you to understand why I write a blog and have written a book about my paralyzed private parts.

Body

My Early Symptoms were gradual over a period many of years…
•My urine flow became weaker and weaker
•At times I had bowel accidents as I walked
•I was lethargic and depressed but luckily for me I was working as an elementary PE teacher so I had little opportunity to give in to how tired I felt. My symptoms just made my job really hard.
•Food did not taste good
•Had a pain in the side of my body that would not go away.

Finding help

I went to several doctors was offered stool softeners, antidepressants for irritable bowel syndrome and depression.

This condition is difficult to diagnosis

Kirkus Review, They liked it!!

TITLE INFORMATION KIRKUS PICTURE
BEYOND EMBARRASSMENT
Reclaiming Your Life with Neurogenic Bladder and Bowel
JoAnne Lake and Julia Parker
Triumph Media Press (241 pp.)
$16.95 paperback
ISBN: 978-0-99-643054-8; December 1, 2015

BOOK REVIEW
Lake’s debut offers a candid memoir of her experience with neurogenic bladder and a wealth of practical advice about coping with its daily complications.

Five million Americans suffer from neurogenic bladder, which has symptoms and stigmas similar to incontinence. It occurs when nerves between the brain and bladder are damaged, often due to spinal injury or prolonged vaginal delivery of a baby. Lake, a Seattle-based special needs educator, had several strikes against her, including heavy lifting during her youth on a California farm, a difficult first labor, a hysterectomy that included removal of her cervix, and back surgery
on a herniated disk. By age 55, her pain was intense enough to require a urologist’s attention. It turned out that urine retention had stretched her bladder and left her prone to frequent infections, so Lake now had to use an intermittent catheter for every bathroom visit.

Exposure of Heavy Metals can cause Neurogenic Bladder

Heavy Metals Part 1 After my diagnosis of neurogenic bladder I was offered the opportunity to be in a Pathway Genomics study through Harvard University partnering with Bingham Young University. It was a personalized DNA test. The goal of the test was to study what patients did with the knowledge of their genetic predisposition. Would…

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