Trudy Triumph's Neurogenic Bladder Blog

Neurogenic Bladder and my life still goes on

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Yes, I have a physical disability.  Sometimes I don't feel that great but I try to make the best of my life.  I want to be your cheerleader: to let you know that after taking care of your body there is still time to laugh and live a good life.  Many people ask me about incontinence and think because I have both bowel and bladder incontinence that it must be a death sentence. I am here to remind you that it is not and despite some hassles, life goes on.  

Because we are so shy to talk about our toileting issues and there is so much mystery I thought that for today I would give you folks a little lesson to pass on to the "Nay-Sayers" in your life, so that our disability will seem less shocking to them.

Here it is:

There are all kinds of incontinence. I know the many types can be confusing, so I have compiled a short explanation of each.

 I have Urinary Retention  Some are not able to pee because of a blockage in their urethra and others have a urinary sphincter bladder muscle that refuses to contract.  I am unsure of the cause of mine. It was not discovered until my kidneys became distressed. Retention of urine can be caused by anything from mental illness or other any number of other neurological disorders to physical injury of the brain, spine or urinary system dysfunction, even kidney stones, if they prevent the normal operation of the bladder, especially if they block the neck of the urethra.

People who have Urinary retention can experience Overflow Incontinence.  The bladder is way too full, sometimes urine pushes past the sphincter muscle and dribbles out. This is a rather common problem. 

Fecal Incontinence – Can be caused by sacral nerves that are not very effective. I put out a shout to a group that I am a member of and they gave me great suggestions to get things moving.  Another and probably more correct option for help would have been to contact my doctor.  I am sure she would have helped, as well. Fecal incontinence is common for people with crohn's disease, ulcerative colitis, uncontrolled diarrhea, and cognitive disabilities.

These next two types are much more common:

Stress Incontinence is the diagnosis when a physical exertion results in the inability to control the bladder.  For instance, if a person sneezes, lifts a heavy object or just cracks up and they just cannot get to toilet in time.  Oftentimes it is caused by muscles and tendons that are stretched out due to pregnancy and childbirth; the muscles have become weak and over-stretched.  It also can be caused by a neurological disorder or even surgery.

Urge Incontinence is the condition when a person just cannot get to the toilet in time after the urge to relieve him/herself is felt.  Some women have painful bladders and the urge can be constant, causing the sufferer just to dribble a little at a time. Sometimes a large amount (a full-fledged flood) of urine is lost when women with urge incontinence need to urinate right NOW!  This type of incontinence can be the result of bladder spasms or strong debilitating contractions or cramping; whenever it hits, the sufferer has little time to reach the toilet.

Functional Incontinence– or Reflex Incontinence is often paired with a cognitive disorder such as autism or a developmental disability or neurological complication following surgery.  As a result, the person may not even feel the urge to urinate; it just happens to them without any warning, feeling or urge.

Mixed Incontinence is some combination of any of the above.  I personally know there are women out there who feel so isolated because they are afraid to even leave their home due to an intense fear of having an accident. You are not alone! Reach out to others who share your condition; it really helps!

Nocturnal Enuresis or bedwetting is suffered particularly by adolescent boys, but adults as well, who as a result rely on overnight protective products, which can help significantly.  Bedwetting can caused by anything from a childhood trauma, mental illness, or the inability of the body to produce an anti-diuretic hormone that slows the production of urine at night.  In other words, there can be emotional and physical factors leading to this type of incontinence.

I hope this helps take the mystery out of the condition that many of us have in varying degrees and presentations . . . It is manageable, when you stay on top of it, though and understand how to tackle it.

Now, Go enjoy your day!

2 Responses to “Neurogenic Bladder and my life still goes on”

  1. Reply Mike

    I have full urinary retention and have been cathing since December, 2015. I have been to several urologists and have had a Botox treatment and two Interstim procedures. So far no changes. I am very disappointed and depressed with this situation which up until this point seems incurable. I would love to hear how other people are handling this disease in their lives. Everyday is a challenge and I don’t know how long I can handle this.

    • Reply Trudy Triumph

      Your comment breaks my heart. I am very sorry you are having a difficult time. I hope you recover quickly from your interstem surgeries and that they can be removed safely. I would like to send you an article on depression that I wrote. I am trying to put it in a magazine so I have not published it on my blog yet. I hope the words help you. Please send me your email so I can get it to you. Hopelessness and depression are understandable with this condition. It can be isolating and painful. I have found for myself that the trick is to just get out. I know it is hard but the interaction with people is so important. The story I will send is about my job at a homeless shelter. Simple, I am not there long, but long enough to feel the gratitude for all that I have, and to interact with kind people. Please remember that you are not alone.

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