Trudy Triumph's Neurogenic Bladder Blog

Posts Tagged: Beyond Embarrassment

Depression and a Neurogenic Bladder and Bowel

Depression is a real condition for those of us who live with a chronic condition.  Just yesterday, Tuesday, I invited a friend to walk with me.  It turned out that I ended up going by myself.  It was so good that I did because, I ended up having an accident the furthest point from my…

Reliable Medical Information for the Patient from a Biosleuth

Does it Keep You Up at Night? How to Find Reliable Medical Information In-Between Doctor Appointments So, you had your doctor’s appointment in the morning and you’re replaying the appointment again in you head. The doctor reviewed your health status and gave you a list of To Do items that he’d like for you to…

Beyond Embarrassment Free on Kindle May 21-25

Allow me to give you the eBook, “Beyond Embarrassment.” My husbands birthday is tomorrow so giving is in the air. Please enjoy and share this with your friends. Free on Kindle May 21-25 “Beyond Embarrassment: Reclaiming Your Life With Neurogenic Bladder and Bowel” by JoAnne Lake with Julia Parker MS, MLIS and Lora Plaskon MS,…

Pelvic Pain and Bladder Infections

Trudy talks about Pelvic Pain: Pelvic pain has many causes; endometriosis, menstruation, constipation, for me I am sure mine was caused by bladder infections that cropped up nonstop, because of my underactive bladder. With all of the drama and head games swirling in my head I, at one time, I lost my identity.  Was I a sexy…

A Flacid Bladder Question for Trudy

Question for Trudy: Hi! First I want to say thanks for being brave and speaking out about this problem. I have small, flaccid neurogenic bladder. My question is should I wear diapers? I do wear menstrual pads, but sometimes they are not strong enough to keep the fluid in, so I must change them from…

Question..Will my bladder function come back?

Question: Hi “Trudy,   I’m starting to urinate on my own after 5 months of a neurogenic bladder.  Mine was caused by a viral infection of my brain and spinal cord. My diagnoses were Acute Disemminated Encyphalomyelitis and Transverse Myelitis AND Meningitis.  A pretty big attack to survive of my nervous system.  I’m happy to share…

Woman’s Intermittent Catheter, you can do it!

Question: Dear Trudy, I would like to be part of a support group of neurogenic bladder. I am very concerned about it as far as the urologist advised me to self-catheter twice a day. I am in shock. My husband is helping me right now but I have to get used of it. Also I am…

BEYOND EMBARRASSMENT receives the Silver Living Now Award for Enriching Lives

When we wrote Beyond Embarrassment, the goal was to offer comfort and compassion to those dealing with neurogenic bladder and bowel, because this disability is so embarrassing. The tag line, for Trudy Triumph, the blog and the book,  is…Shed the shame and stand proud. This award shows that the judges understood the point of our book and I am thrilled…

New Back Cover of Beyond Embarrassment

Book Description:052915-BeyondEmbarrassment2_HiRes_Foreword2_6x9

Back Cover:

HEALTH/Women

Reclaim Your Life

Release the Fear and Embarrassment

For Women Who Suffer and Those Who Share Their Journey

JoAnne’s story is engaging. It inspires, while offering suggestions for managing life’s hurdles. In an honest, will-to-succeed style, this journey focuses on neurogenic bladder and bowel condition in which a person lacks control due to a brain spinal cord or nerve condition. The source can be aging, a chronic health condition, trauma, or many other causes. Often called an under active or over active bladder or bowel, its symptoms vary but the difficult daily reality is shared.

Valuable guide, much like a fresh prescription filled with practical advice
Educates, empathizes, and encourages women who struggle with the same health issue
Written with a girlfriend-to girlfriend feel, sharing the path to survival and success
Sprinkled with Tips and Knowledge Nuggets that high light points of importance
Encouraging and equipping the reader to live every day to the utmost

With medical input from expert medical research librarian and Biosleuth, Julia Parker, readers will discover current research and facts equipping them to meet their medical challenges and work with their medical teams. Valuable for healthcare professionals to share with patients

“Offers a candid memoir of her experience with neurogenic bladder and a wealth of practical advice about coping with its daily complications. An invaluable resource for NB sufferers.”

—Kirkus Review

“This is the best and most complete book on neurogenic bladder syndrome that I have read in my 30 years of family practice medicine. I will use it again and again as a resource and refer my patients to read this excellent book.”

—Kathy Matteson MN FNP ND Medical Provider

Kidney Kindness for the Neurogenic Bladder

About six months ago I was diagnosed with Third Stage Renal Failure. A wake up call for sure and I flipped of course because I am not the stoic sort. Please do not think bad of me, yes I grew up with Love Story too, I just do not want be the one saying long goodbyes. I know God is in control and in the end I have gotten used to the idea. Here is a little of what I have learned.

My husband and I had travels to do, so just yesterday was my first visit with the doctor who specializes in kidneys a Nephrologist.

What Is a Nephrologist?

https://www.davita.com/kidney-disease/overview/treatment-overview/what-is-a-nephrologist?/e/6884

A nephrologist is a medical doctor who specializes in kidney care and treating diseases of the kidneys. The term nephrologist comes from the Greek word “nephros”, which means kidney or renal and “ologist” refers to someone who studies. Nephrologists are also called kidney doctors. Nephrologists are educated in internal medicine and then undergo more training to specialize in treating patients with kidney diseases. They commonly treat chronic kidney disease (CKD), polycystic kidney disease (PKD), acute renal failure, kidney stones and high blood pressure and are educated on all aspects of kidney transplantation and dialysis.

For years I have been visiting the Virginia Mason Urology clinic, in Seattle Washington. Actually it is called the Urology and Kidney Transplant Department, Thoughts of dread swelled the first day I saw that sign. I was shocked to see the sign actually, I was not really thinking that there was such a strong connection between urological woes and kidney disease. “No dialysis or kidney transplant for me!” has been my mantra. Being real I need to know that even though it is unlikely it is possible for anyone with urological problems to end up with kidney disease.

My kidney woes likely started many years ago when I was living undiagnosed urine retention and then years following with back to back balder infections. For that part of the story check out my book, Beyond Embarrassment: Reclaiming your life with neurogenic bladder and bowel.

So yesterday was my first appointment on the other side. I was ushered..

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