Trudy Triumph's Neurogenic Bladder Blog

Posts Categorized: Incontinence

Pelvic Pain and Bladder Infections

Trudy talks about Pelvic Pain: Pelvic pain has many causes; endometriosis, menstruation, constipation, for me I am sure mine was caused by bladder infections that cropped up nonstop, because of my underactive bladder. With all of the drama and head games swirling in my head I, at one time, I lost my identity.  Was I a sexy…

A Flacid Bladder Question for Trudy

Question for Trudy: Hi! First I want to say thanks for being brave and speaking out about this problem. I have small, flaccid neurogenic bladder. My question is should I wear diapers? I do wear menstrual pads, but sometimes they are not strong enough to keep the fluid in, so I must change them from…

An Attitude Change was in Order

Now I am bold when it comes to my health story.  This attitude is new to me because I have not always felt this way.  At first I was horrified, then very embarrassed by my diagnosis of neurogeneic bladder. After trying to learn more about this difficult condition, I felt frustrated because I could not find the…

Speech by Trudy Triumph at CURE UAB Symposium, Denver CO

I was invited to speak at the 2nd International Congress on Under-active Bladder – CURE UAB, Denver CO. 12-3-15.

CURE-UAB is the only meeting dedicated to underactive bladder. The conference should help to create awareness for the aging UAB. The goal of CURE-UAB is to dramatically increase public awareness and translate research results into clinical care that will improve health outcomes in older adults.

I was invited to speak at the CURE UAB Symposium because I write about the underactive bladder. I am also a patient. I use an intermittent catheter, my kidneys are wearing down. I am a patient, but I refuse to be quiet because our voices need to be heard. I feel thankful to have an opportunity to share the patients voice.

My Notes.

Intro

I am one of 5 million people in America with bladder problems.

I feel humbled and honored to stand before you and right now.

Thank you for making this a priority.

You are working to make my life better and others as well.

Try to think back to a time when you faced a life changing

situation that you wanted to run from.

I want you to understand this walk I am on and to get an idea of my challenges.

To see that it takes a lot to have my head held high in a society, that finds it is acceptable to make jokes, about a life threatening, sometimes humiliating condition.

I want you to understand why I write a blog and have written a book about my paralyzed private parts.

Body

My Early Symptoms were gradual over a period many of years…
•My urine flow became weaker and weaker
•At times I had bowel accidents as I walked
•I was lethargic and depressed but luckily for me I was working as an elementary PE teacher so I had little opportunity to give in to how tired I felt. My symptoms just made my job really hard.
•Food did not taste good
•Had a pain in the side of my body that would not go away.

Finding help

I went to several doctors was offered stool softeners, antidepressants for irritable bowel syndrome and depression.

This condition is difficult to diagnosis

Industry ‘must do more’ to Improve Urinary Catheters

I saw this article on BBC News and need to pass it on to you.  Please read it. Industry ‘must do more’ to improve urinary catheters When I was first diagnosed with urine retention I was instructed  to buy reusable red rubber catheters.  After the use of the catheter I was instructed to wash it with dial soap and…

Stem Cell Therapy : Are there applications to treat Bladder Disease?

Stem cell research is touted as the next tool through which medical breakthroughs will be achieved. Since 2004, millions of dollars in grants have been awarded to educate the public and fund stem cell research in California (CA), after a proposition was approved by voters to create the California Institute for Regenerative Medicine (CIRM). 1% of that funding, to date, has been set aside for urinary tract/kidney disease research [https://www.cirm.ca.gov/our-progress/stem-cell-research-funding-overview]. But stem cell research is controversial, right? Doesn’t it involve the use of embryonic stem cells which are derived from harvested embryos? Aren’t people worried that people will choose to terminate pregnancies for profit and that would be an ethical issue? No! – Not all stem cell research uses embryo-derived cells. Stem cells are found throughout the body in various adult tissues including bone marrow, which can be used to obtain stem cells, referred to as “adult stem cells”. These are the cells that your body produces naturally, that inhabit various tissues that need to be regenerated constantly: bone marrow (blood cells), adipose (fat) tissue, mesenchymal cells, or even the dental pulp of your teeth contain adult stem cells. Mesenchymal stem cells (MSCs) derived from the bone marrow or from within the vasculature within fat tissue [Zuk, P. A., 2001] can ultimately become bone, cartilage or fat cells. Research studies have shown that MSC’s can mature and incorporate into living lung, liver, heart [Li, J. H., 2008] and even the brain. Stem cells can also be harvested from muscle (a source that is easily accessed and available in large quantities). Although embryonic stem cells were initially favored as it was thought they were more flexible to become any kind of tissue, this has been shown to not be the case. Adult MSC’s have been shown to be just as efficient in developing into vascular cells, for instance [De Coppi, P., 2007].

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