Trudy Triumph's Neurogenic Bladder Blog

Posts Categorized: Devices

Pelvic Pain and Bladder Infections

Trudy talks about Pelvic Pain: Pelvic pain has many causes; endometriosis, menstruation, constipation, for me I am sure mine was caused by bladder infections that cropped up nonstop, because of my underactive bladder. With all of the drama and head games swirling in my head I, at one time, I lost my identity.  Was I a sexy…

Speech, Underactive Bladder Science and Policy, WA DC, March 10, 2017

CURE-UAB is the only meeting dedicated to underactive bladder. The conference should help to create awareness for the aging UAB. The goal of CURE-UAB is to dramatically increase public awareness and translate research results into clinical care that will improve health outcomes in older adults.  My talk to the UAB, Third gathering in Washington DC,…

Drugs and Devices to Discuss with Your Doctor

               Michelle Y. Llamas                  Snior Content Writer, Drugwatch.com                  mllamas@drugwatch.com  Occasionally we are fortunate enough to have a guest. Michelle Llamas is a blogger from Drug Watch We all rely on drugs and medical devices to improve the quality of life for us and out loved ones. But sometimes drugs put device companies put unsafe products on the…

First Encounter with CompactCath, my Free Sample

Currently I use Speedicath by Coloplast.
Currently I use SpeedicathIMG_5584 by Coloplast. For those who do not know Speedicath is small and looks like a skinny tube of lipstick. The complaints I have heard about Speediacath is that it is too short and one sometimes has to touch the lubricated ridged tip to insert it easily. This catheter has served me well over the years.

Now I am provided with another option.IMG_5579
The sample I received was size twelve french. Fourteen french is what I normally use. Measure

My first time using the catheter I definitely needed

two hands. ( I can’t resit this tid bit. Most medical pictures have a woman separate her labia with one had and insert a catheter with the other. For my book Beyond Embarrassment I had a graphic artist change that in a picture, because just by the fact of a woman opening her legs her labia opens as well. Which is a good thing for the first time I inserted this new catheter!) I needed one hand to hold the device and one hand to pull the tubing out of the wound container. As I pulled the tubing through the protective sheath, the white cylinder you see in the picture. (which is great because I am sure this will cut down on infection) I got a little pinch because I did not pull it down far enough.

I then pulled on the wound tubing to insert the catheter in my bladder. There is no lubrication to the catheter yet the catheter is easily inserted. An excess of lubrication can cause a yuky build up over the day so it is nice that they have this feature. The urine flowed out quickly.

The ring shape made it easier to hold.

Countless times I have dropped a catheter in the toilet. Not a fun fishing expedition. This is a part of the design that is surprising to me. It is secure in my hands and easy to held while using.

I am sure insertion will get better with practice.

Support for Children Learning to Cath

Dear Trudy,
I stumbled upon your site in my search for information about neurogenic bladders. Perhaps you or the broader bladder community can help me. I am curious if there are any other moms (or dads/families) out there that can offer advice, guidance, direction, maybe overall support for this mom in flux. My 6 year old daughter was born with a tethered spinal cord which has been corrected (twice) and in connection a neurogenic bladder. She is 90% potty trained. She is able to go during the day but cannot stay dry at night. Given her age (“pull ups” aren’t “cool”) at 6 the reality of cathing is entering our lives. Bottom line with level 5 reflex and the bladder condition cathing will definitely be in her future. Mostly likely 2-3 times a day so we know it’s actually emptied. She is NOT a fan of it nor does she really understand. Doctors are recommending a “Stoma” (aka port through her belly button). They say it’s much easier to access, cleaner and convenient. Overall an “easier” way to go. It can be reversed and she will still be able to go during the day. I don’t want to make a decision based on it being “easy” though i’m sure for one that has to cath convenience is a factor. My question to this community is does anyone have it? Do you like it? How has it bettered your daily life vs. cathing?

Dear Friend,

Thank you for the question. I am not a doctor so I would not be the one to offer medical advice but there are organizations that might be able to offer advice. Organizations we endorse are found on the blog resource tab. In the book Beyond Embarrassment, there are many more resources.

You might try this one first. Underactive Bladder Foundation http://www.underactivebladder.org/

I have personally met the founder and he is an honest good man. He would be a good to start with.

I hope all goes well, Trudy

Dear Trudy,

I am looking for an online support group for kids who have neurogenic bladder and have to self cath every day. Can you help?

Thanks,

Dear Friend,

I am not sure where you can find support groups for kids. Perhaps some information from the resource page on the blog and book, as well, will help.

Kids love to hang out and just be around other kids. Perhaps some would be too shy about discussing toileting with others.

I know from working in a school and going to the nurses room to cath myself there are several students who do the same thing every year. These kids go to the restroom and take care of business so they can go back to the halls and enjoy their friends. They consider it a quick in and out so they can get back to life.

If you feel like you are the one that needs a support group (I totally get that feeling, because as parents so many crazy things thrown at us) please call me. Email and I will send you my number. I know you’re afraid for your child and it is hard. Please try to see this through your child’s eyes. He will forever cath so this is normal for him. No sympathy needed. He will get on with it and live a good life, I am sure. Not long ago I watched a great documentary from Net Flex. Called When I Walk, It was great and I encourage you to watch it. It was about a young man going through life losing everything,walking, all of it, because he had Multiple Sclerosis. His mother gave him no sympathy. She was his cheerleader. She tells him, “You have one life, go out there and live it, think of all that have to live in slums! You do not live in a slum!” Please write and let me know what you think.

I hope this helps, Trudy

Neurogenic Bladder Device RIP-OFF

The ability for me to conveniently choose and buy the catheter I need is a matter of life and death. We do not have the ability to go to a catheter super store and just pick up what we need.

Biosleuth’s Turn: Thinking Through Brain Fog

Biosleuth says, ” This time the question was about brain fog. I invite readers to submit their questions about topics relating to Neurogenic Bladder/Bowel so I can dig through the Medical Literature. Submit your Questions via the “Ask A Question” section of the blog.

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